Details
Study title
Perceived Discrimination and Stigma in People living with Diabetes in Switzerland
Ref study 12108
Study language German
Contributing institutions
Authors
Keywords
  • Lebensqualität
  • Schweiz
  • Diskriminierung
  • Stigmatisierung
  • Diabetes
Disciplines
Period
2011-2014
Geographical space
Schweiz
Country
  • Switzerland
Abstract
Despite the prevailing perception that diabetes mellitus is no stigmatized condition, there is now growing scientific evidence of stigma. However, there have been no comprehensive, in-depth studies of stigma on people living with diabetes. Against this background, the present research study aimed to establish whether people living with diabetes in Switzerland experience stigma and discrimination, and if so, in what context and to what extent. Further, the study aimed to establish whether and how experienced and perceived stigma impact the quality of life of those affected.
Results
The sample included 3,347 people with type 1 and 2 diabetes, aged 16-96, living in diverse living conditions in the German- and French-speaking areas of Switzerland. 68.5% of the respondents reported experiences of discrimination and exclusion due to diabetes in different situations in the contexts of leisure time and in their relations with friends and acquaintances, education and employment, service in the army, and in rela-tion to mobility issues, taxation, and private insurances. 84.4% also reported perceptions of stereotyping insinuating their inferiority to others as a result of their health condition.
Respondents who reported higher levels of perceived stigma reported higher levels of psychological distress (β = 0.37), more pronounced depressive symptoms (β = 0.33), and less social support (β = -0.22). Higher psychological distress (β = -0.29) and more pronounced depressive symptoms (β = -0.28), in turn, predict-ed lower quality of life. Findings suggest that stigma should be considered as an additional predictor of quali-ty of life in PWD. Therefore, health care providers should support PWD’s fight against stigma. Especially, social workers are called to engage in advocacy to reduce discrimination against PWD and claim equal chances for them. They are also called to develop and implement interventions to correct stereotypes about PWD.
Methods (description)
To generate data on the frequency and distribution of stigma experiences, we used an anonymous paper-and-pencil self-administered questionnaire (SAQ). The SAQ drew on a qualitative elicitation study. Data were analysed using descriptive statistics as well as multivariate procedures and structural equation modelling. The SAQ was distributed to the readers of a Swiss Journal destined to people living with diabetes in order to generate a large and diverse convenience sample.
Methods (instruments)
  • Other method instrument : Methodenkombination : 1) Qualitative Untersuchung (problemzentrierte Interviews); 2) darauf aufbauende quantitative Studie (standardisierte Befragung-schriftlich)
  • Standardised interviews - by mail
Publications
  • Raemy, Annabelle; Gredig, Daniel. 2013. Ungerechte Behandlung von Menschen mit Diabetes in Alltag und Beruf. In: d-journal. H. 221. S. 14-18.
  • Raemy, Annabelle; Gredig, Daniel. 2013. Stigmatisierung - wie gehen Menschen mit Diabetes mit dem Stigma um?. In: d-journal. H. 222. S. 16-19.
  • Raemy, Annabelle; Gredig, Daniel. 2014. Les inégalités de traitement et la dévalorisation des personnes diabétiques. In: d-journal romand. H.4. S. 4-7.
  • Raemy, Annabelle; Gredig, Daniel. 2014. Ungerechte Behandlung und Herabminderung von Menschen mit Diabetes. In: d-journal. H. 230. S. 14-18.
  • Raemy, Annabelle; Gredig, Daniel. 2014. Quelles sont les répercussions de la stigmatisation sur la qualité de vie des personnes atteintes de diabète?. In: d-journal romand. H.5. S.4-6.
  • Raemy, Annabelle; Gredig, Daniel. 2014. Stigmatisierung – Welche Auswirkungen hat das Stigma auf die Lebensqualität von Menschen mit Diabetes?. In: d-journal. H. 231. S. 10-13.
  • Gredig, Daniel; Bartelsen-Raemy, Annabelle. 2017. Stigmatisierungserfahrungen von Menschen mit Diabetes mellitus in der Schweiz. In: Soziale Passagen.
  • Gredig, Daniel; Bartelsen-Raemy, Annabelle. 2016. Diabetes-related stigma affects the quality of life of people living with diabetes mellitus in Switzerland: implications for health care providers. In: Health and Social Care in the Community. Online: 10.1111/hsc.12376
Financed by
Study type
Data availability
Source (Updates) Web
Date created 03.08.2017
Date modified 16.08.2017
Start - End date 01.01.2011 - 30.06.2014